Individuals connected to our Fetal Alcohol Spectrum of Services (FASS) program contributed to a book about the challenges and realities of navigating life with Fetal Alcohol Spectrum Disorder (FASD). Under the guidance of Jared Epp, Carleton University PhD candidate and former housing support worker with Bissell Centre, who facilitated the group in sharing stories of what was most important to them. Fifteen people shared their stories, captured in this captivating collection. Born Broken is a book that’s an immersive experience into what it means to have FASD and the barriers it can create.
The group celebrated the release of this Born Broken book this past month with a small and intimate reading and sharing. Everyone who contributed to the book received a copy, and a few were shared around the community to help spread its positive message.
Copies of Born Broken books are available to purchase from the Bissell Thrift Shop on 118 Avenue..
Below is the preface to the book, written by Jared Epp. This firsthand experience of seeing the collection come together illuminated the importance of this book for the contributors and for those about to read it and gain a better understanding of FASD.
Preface from Born Broken
A group of individuals connected to Bissell Centre’s Fetal Alcohol Spectrum of Services (FASS) came together for a book project. The goal was to provide an opportunity for folks to share whatever kind of content they wanted. Leaving it open-ended allowed the individuals participating in the project to share what was meaningful to them. Their contributions didn’t have to only be about living with Fetal Alcohol Spectrum Disorder (FASD). A number of contributors did want to share their stories about living with FAD, about their daily challenges, as well as the impact of receiving their diagnosis. Others talked about different things. There are stories about adventure on Edmonton’s public transit, sewing denim, dreaming, making music and art, the challenges of finding and keeping a job and many other events and situations the reader will soon encounter.
Woven throughout the book are stories, ideas, frustrations, thoughts and reflections, offering a window into the experience of entering into the world a certain way.
In our last group meeting, we had to come up with a title for the book. Each contributor present was invited to come up with some titles, and then there would be a vote.
These were the title ideas:
- Born Broken
- The Struggle is Real
- Drumbeats of Hope
- Light in the Dark
- Perfectly Imperfect
- Getting Dealt a Bad Hand
Everyone had agreed on Heidi’s subtitle, “Reflections on Life and Resiliency from Individuals living with FASD,” as it put a positive spin on the main title.
Born Broken won by one vote over The Struggle is Real and Light in the Dark. There was a lot of discussion and debate on the chosen title. Some people felt it was too negative, but they also acknowledged it’s sentiment. In many ways, the titles and the debate around it set a theme that echoes through each story: individuals confronting and overcoming something they were born with, have no control over, and yet seems invisible to those outside the lived experience of FASD. The reader is invited to encounter the diverse contributions within the book, keeping in mind the unsettled nature of its title and the realities of living with FASD.